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Thursday, 10 Kislev, 5784
  |  November 23, 2023

10 Myths of Hearing Loss – From Personal Knowledge

As a mother of two children with hearing loss, Chaya Raichik was disturbed by a recent ad she's seen from Dor Yesharim about their newest genetic testing panel. She wrote an article busting common myths. Full Story

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Mr duvid wolf
January 8, 2023 10:12 pm

Thanks so much for your true life experience and clarifying this subject so people can reach their own decisions

I'm sorry that you were shocked...
January 8, 2023 10:23 pm

But I still think that most of us would still rather go out with people who we know don’t have this problem. I could write articles about how manageable life is with 30 other diseases, exposing “myths” that people have with them, and still wouldn’t want children that have those diseases.

Kudos to Dor Yesharim for giving the option for screening more diseases. As far as I’m concerned, the more the merrier.

Tell me you didnt read the article...
Reply to  I'm sorry that you were shocked...
January 8, 2023 11:14 pm

… without telling me that you didn’t read it.

Dor Yesharim was founded to test for life threatening and debilitating conditions…. There are other organizations that will test for everything if you are so inclined.

There are many many shidduchim already being turned down because of this, a much higher rate then from the few conditions they tested for previously. Part of their selling point was only turning down 1/100 shidduchim.

I read the article
Reply to  Tell me you didnt read the article...
January 9, 2023 12:03 am

From your tone, I assume that this issue is personal to you. You probably have someone close that has hearing loss. And I’m not trying ro be offensive in any way. However, unlike you, there were certain things said in this article that didn’t make sense to me. I’m referring to what the author writes in point 5 (which is the point you and I are disagreeing on). And when you look it up, you’ll see that the author doesn’t understand how certain diseases work. Here goes: The author writes in point 5: “Especially when considering the proliferation of other… Read more »

Chaya Raichik
Reply to  I read the article
January 9, 2023 7:22 am

Down Syndrome is a chromosol abnormaility not a heriditery genetic mutation. What I said was that in an era of inclusion where we encourage families to keep and raise and the community provides support children with Down Syndrome, why the sensationalist advertising for a chronic condition comparable to the other ones mentioned. You don’t need to do genetic testing for the other chronic conditions . If your family has someone with it, then there’s a high likelihood that at least one of your kids will have it. If your goal when looking for a marriage partner is how can I… Read more »

Not quite correct
Reply to  I read the article
January 9, 2023 7:23 am

Down syndrome is genetic but can only be screened for in the fetus.
Amniocentises is a test on amnionic fluid which will show it.
It is caused by a duplicated gene in the fetus.
The parents wont show it as it comes about as the fetus is formed.
There are other genetic abnormalites that are only found in the fetus as well.

When I said it's not genetic
Reply to  Not quite correct
January 9, 2023 11:29 am

What I was saying was that there’s no gene you can test for in the parents. Which is what Dor Yesharim is all about – screening the parents genes

Perhaps
Reply to  Not quite correct
January 9, 2023 2:28 pm

Perhaps what should be clarified is that Down Syndrome is genetic in the sense of the extra chromosone 21…but it is not HEREDITARY. I.e..it doesn’t mean that the syndrome can be passed down through subsequent generations.

Not the point
Reply to  I read the article
January 9, 2023 8:51 am

Any miscomparisons in point 5 are details that are irrelevent to the general point that we should not test for everything under the sun even if we could as you suggest by saying “the more the merrier”. The truth is that the more conditions we test for the more shidduchim get nixed and decisions as to which conditions to test cannot be taken lightly. That is why dor yesharim makes this panel optional and for many years they have had some conditions that are MUCH WORSE than hearing loss optional because they are not life threatening. As an aside you… Read more »

I get that
Reply to  Not the point
January 9, 2023 11:34 am

When I wrote “had this problem”, I meant had this gene. Sorry for not being clear.

That's where I disagree with you
Reply to  Not the point
January 9, 2023 11:42 am

While I don’t think we need to test for everything under the sun, I do believe that as time goes on, we should test for more diseases. This is because, as time goes on, certain diseases are being eradicated, we therefore can afford to screen for a new disease for every disease that doesn’t exist anymore. For example, now that Tay Sachs doesn’t exist anymore in the frum community, we can try getting rid of hearing loss, a disease that’s not so terrible (as the article explains nicely, that it’s a manageable life). That way, slowly but surely we can… Read more »

Punkt Farkert
Reply to  That's where I disagree with you
January 9, 2023 1:25 pm

Anyone who understands genetics knows that Tay Sachs and other conditions which Dor Yesharim tests for are not eradicated they are actually more prevalent. Dor Yesharim makes sure that someone who is a carrier does not marry another carrier to ensure that they do not have kids who suffer from that condition. They obviously do not make sure that carriers do not get married at all. Since every carrier who has kids passes along that gene to 50% of their kids, a carrier with 6-10 kids creates 3-5 new carriers. As time goes on, less people are affected but more… Read more »

Ouch!
Reply to  I'm sorry that you were shocked...
January 8, 2023 11:36 pm

It’s too bad that they can’t test for extreme insensitivity. They have seminars for that. You should register.

The irony
Reply to  Ouch!
January 9, 2023 2:11 am

I was not trying to be insensitive, and I don’t see anything that would be majorly insensitive in my comment. Just because someone unfortunately has children with a medical issue, doesn’t mean I can’t disagree with them. What’s funny is, that if we’d compare my comment with yours, I think it’s pretty clear which comment is more insensitive.

Number 8
January 8, 2023 10:40 pm

Thanks for the article
By number 8 is the exact reason that dor yeshirin is offering this testing..

Read it again
Reply to  Number 8
January 8, 2023 11:16 pm

Thats for someone who HAS hearing loss. Dor yesharim is testing for people who are CARRIERS of hearing loss and don’t show any “symptoms”

How genetic testing works
Reply to  Read it again
January 8, 2023 11:39 pm

If each parent doesnt have hearing loss, but they both carry the gene then each kid has a 25 percent chance of having hearing loss. This is the scenario Dor Yesharim is working to prevent. Even in families with 10/12 kids, it’s very unusual to have more then two kids with hearing loss when its genetic because the chance is small.

If one parent has hearing loss and the other parent doesnt have the gene then their kids will not have any chance of getting this hearing loss.

Not quite true
Reply to  How genetic testing works
January 9, 2023 7:27 am

There can be other causes of hearing loss in the fetus such as viral diseases like measles during pregnancy
Also they are not testing for every cause of hearing loss

Genetic but not life threatening
Reply to  Number 8
January 9, 2023 7:32 am

It’s genetic and 50% chance of giving to children. If one parent has it, then either the child has or is not even a carrier. (carrier only if you have hearing impairment) I have hearing loss and I know that dor Yishorim can’t do anything about it for future generations because it has nothing to do with whom you marry… That said, hearing impairment is Not life threatening and something you can live with till very very old age… No pain involved, just wear the hearing aids and all is good!

Everyone's experience is different
Reply to  Genetic but not life threatening
January 10, 2023 9:30 am

I have hearing loss as well, and I would not want my children to go thru this.

Thank you!
January 8, 2023 11:27 pm

Truly beautiful!

We have wheelchairs!
January 9, 2023 12:10 am

If there’s a test that can identify if my kids will be lame or not, I will take that test. Sure we have wheelchairs and ramps, but seriously? Is this really the argument?

The comparison to down syndrome has nothing to do with anything, you are comparing dating to when someone is actually pregnant.

What happened to Dor Yeshorim?
January 9, 2023 12:30 am

I’m so happy about this article. We had a heated discussion about this around our Shabbos table. We always though Dor Yeshorim was about preventing LIFE THREATENING illnesses. Does this mean that if gene mutations were found for IBD, IBS, asthma, chronic sinusitis, diabetes the list is endless.. we’d have the option to test for those panels as well? What is the newest criteria? The amount of knowledge of how genetics work, is already sorely lacking. How many people stay away from families from a genetic illness already like a hot potato, not knowing what is explained in the article?… Read more »

Too much weight is given to the wrong criteria.
Reply to  What happened to Dor Yeshorim?
January 9, 2023 5:58 am

Testing for life threatening genetic problems which are not curently treatable is very important. What is sad is that in the frum world the shidduch process focus is on arbitrary checklists instead of on human beings. No one knows how a person will deal with life.

Married to someone who was then undiagnosed
January 9, 2023 1:01 am

If I could have done premarital testing for ADHD, I would have!! If I could test to ensure that my kids won’t have ADHD, I WOULD HAVE!! Nobody is denying that people with illnesses and disabilities deserve a full life with full respect and full accommodations. But there are things we can avoid and things we can’t. I dont want a kid with learning disabilities I don’t want a kid with horrible eye sight I don’t want a child with ADHD The fact that I have them is a sign of golus. I love them and provide them with all… Read more »

If you did
Reply to  Married to someone who was then undiagnosed
January 9, 2023 11:48 am

You probably would never get married because there is always something to check for.

One more thing
January 9, 2023 1:25 am

There will be fewer serious genetic diseases if we can find a cure for gezhe-itis

No respect from the Band Members
January 9, 2023 5:59 am

At my children’s wedding, I threatened to withhold payment if the music volume wouldn’t be lowered. I payed anyway…. I apologize to myself and all our guest who may have suffered irreversable hearing loss due to the band’s refusal. For me, I’m an older mother. For the chosson/kallah and friends – they are the parents that will eventually pass down this loss. Somehow, the music at my wedding was freilach and everyone enjoyed dancing Eli Lipsker did a fine job! There was no emphasis on nigunim only on normal decibal. THIS IS where you should be putting your effort –… Read more »

Misplaced testing
January 9, 2023 7:31 am

We are told to look for yiras shomaiyim and midos tovos when dating. Yes, there are other factorswhich help determine if the shidduch is shayech or not as well. But screening for hearing loss can be done through a regular test, this is not the point of dor yeshorim. Dor yeshorim is to prevent life-threatening illnesses such as Tay-Sachs. I feel disappointed that the medical advances we see today is being used to give a foothold for the yetzer hara to get in and stop shidduchim. A hearing loss is not a big deal, I have a son with hearing… Read more »

I disagree
Reply to  Misplaced testing
January 9, 2023 11:47 am

Out of all the reasons you can turn down a shidduch, genetic reasons are a very good one.

And just maybe
Reply to  Misplaced testing
January 9, 2023 11:51 am

The fact that we can test for genetics these days, is because God wants us to get rid of our diseases. And that therefore, our bashert will be someone that doesn’t share with you a genetic mutation. And if so, on the contrary, it’s easier these days to find your bashert, there’s a smaller pool of people to choose from

We all want healthy kids
January 9, 2023 9:08 am

The argument against screening for more diseases was always that at some point the balance of benefit vs harm tips to the side of harm for the community. We have many singles already struggling to find the right person. The more we choose to narrow our dating field by refusing to date people with predisposition to various (non life-threatening) conditions, the greater that challenge becomes. Hearing loss is common, (often not genetic) and usually manageable. Since E very single person carries genes to predispose them to some disease, you cannot scan for the perfect healthy specimen, there is no such… Read more »

throw away your devices
January 9, 2023 11:33 am

 “Due to the advent of personal music devices, earphones and earbuds, car radios and ridiculously loud subwoofers at concerts and weddings, the CDC estimates that one in 8 teenagers has hearing loss in both ears and 1 in 6 has hearing loss in one ear. ”

^wow! the Frum community should be focusing on eradicating these toxic devices from their lives and their children’s lives! Internet is evil! We should be making sure All frum weddings and events have music that is below the level of ear damage. (if they have music at those events.)

Carriers
January 9, 2023 11:36 am

Some people are carriers for depression. Should we start testing for that too?

I think they do in Australia.

Not a parent, but took ASL in college
January 9, 2023 12:48 pm

Sign language is NOT becoming a lost art. This is an insult to the deaf community who have a ruch culture and history. There is no need to choose between sign language and English, in fact it is proven to be beneficial to teach both side by side even with hearing children. Additionally, teaching babies sign language gives them the skills to communicate at an earlier stage in life which causes them to be less frustrated than most babies who are unable to communicate their needs. There is nothing wrong with being deaf and not getting cochlear implants, which DO… Read more »

Concerned Parent
January 9, 2023 2:05 pm

I have a few children who have hearing loss due to a genetic mutation. We requested that Dor Yeshorim screen all our children to see if they are carriers, and if they are, we ask any prospective Shidduch to screen so that the gene will not affect any future children. While hearing loss is not necessarily a huge handicap, it can severely hamper quality of life, ability to communicate effectively etc.

Thank you for your article
January 10, 2023 9:29 am

I am a senior citizen. When I was 2, I was seriously ill and lost my hearing in one ear. It did not affect my schooling, as I was always placed near the front. In fact, I was chosen as an honor student for my scholastic achievements in Jr hi and hi school. I didn’t get a hearing aid till I turned 70. Meanwhile, I worked, got married and raised a family. BH

Understanding how loud noise causes hearing loss
January 10, 2023 10:46 am

We are born with tiny hairs inside our ears. As we get older they normally slowly drop off, causing a decrease in hearing, especially in the elderly. However, loud noise also causes these hairs to drop off. This can cause a decrease in hearing loss prematurely. My husband had normal hearing until he started working in a facility at age 35 where he was subjected to very loud noises from airplanes taking off and landing. By by the time he was 45 he needed hearing aids. I also have hearing loss due to an illness. We recently went to a… Read more »

Sharing my own perspective
January 15, 2023 11:04 pm

Thank you for your article Chaya. It was informative and helped me see things clearer. I wanted to comment about number 9 in which you mention that Usher’s is a debilitating disease that Dor Yeshorim tests for. I just want to say I have Ushers and as of now, I am not debilitated BH. I want to meet and hear perspectives of fellow patients, as I have started a support group for Jewish people like me with Ushers Syndrome. If you know of anyone, please let me know!

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